Read an Excerpt
COMMON SYMPTOMS OF DIFFERENT DISABILITIES AND HOW THIS BOOK WILL HELP
Many disabilities share symptoms. If you have mobility issues and/or a pain disorder, if you have an autoimmune disorder, or if you have ADHD or are autistic, these shared symptoms may include:
- Pain
- Fatigue
- Impaired executive function, a.k.a. brain fog
- Insomnia
- Wildly fluctuating “spoon levels” that make planning ahead difficult
- Chronic illness
And of course, all these things can affect our mood, especially motivation.
You might be unfamiliar with the spoon theory and talking about energy in terms of “spoons.” Spoons are used as a metaphor to help visualize how much stored energy you have. It’s important to know this because if you use all your “spoons” in one day, the consequence could be days in bed. Most people have entire cups of energy that they can spend during a day. They need to do very little to replenish those cups. Those of us with disabilities that result in chronic fatigue have a few spoonfuls of energy on any given day, if we are lucky. And it requires much more self-care to replenish that energy.
This cookbook is designed to first help you get your kitchen in order. It’s also designed to make sure you don’t lose focus or get overwhelmed when organizing, planning, prepping, cooking, and storing meals. But most importantly, it isn’t prescriptive and allows for a lot of room to change things for your specific needs.
Taking steps to prevent fatigue and store up “spoons” instead of always overspending is important, even before you start organizing, planning, prepping, cooking, and storing. We don’t talk enough about respecting our body cues and how we can be productive without ableism getting in the way. This is thanks to the internalized ableism that can sound like “Stop being lazy. Just push through it. You aren’t trying hard enough!”
I have developed a way to plan my day that is based in mindfulness, as well as respecting and appreciating my disabilities instead of looking at them as something to overcome. I don’t do anything in this cookbook until I have assessed what my body is telling me. I do this at least twice a day.
When it’s the beginning of my working hours, I check in with my body and assess how many “spoons” I have on a scale of 1 to 10. Then I look at the spreadsheet I created that lists tasks I can do based on that number. During lunch, I reassess to see if my “spoons” are higher or lower than the initial number and adjust my daily tasks accordingly. Some days, tasks need to be removed. Other days, tasks get added. By the end of the day, I feel good about the things I’ve accomplished, I feel great mentally, and my pain levels are still manageable instead of screaming at me.
Here is the table with my tasks. I started it at 10 “spoons” for some good cognitive behavioural positive reinforcement. Of course, your tasks will look different because our lives are different. Use my table as a jumping-off point to give you an outline of what your spreadsheet will look like. It’s important to note that it will take some time to get it just right for your situation. I had to adjust mine a few times as I overestimated or underestimated how many “spoons” would be spent on some tasks. This is okay! The whole point is to create something that ends up working for your needs, that respects and appreciates your unique brand of disability.
